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Welcome! You're not alone.

If your family has been affected by Lyme Disease, or Post-treatment Lyme Disease Syndrome consider the Lyme Disease Support Network your second home.

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Read More from our  First-Time-User Guide.

Lyme Disease Support Network is a patient-to-patient support for people with Lyme Disease.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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What is Lyme Disease and Post-treatment Lyme Disease Syndrome?

Lyme disease, or Lyme borreliosis, is an infectious disease caused by species of bacteria belonging to the genus Borrelia.

Approximately 10 to 20% of patients treated for Lyme disease with a recommended 2–4 week course of antibiotics will have lingering symptoms of fatigue, pain, or joint and muscle aches. In some cases, these can last for more than 6 months. Although often called "chronic Lyme disease," this condition is properly known as "Post-treatment Lyme Disease Syndrome" (PTLDS).

The exact cause of PTLDS is not yet known. Most medical experts believe that the lingering symptoms are the result of residual damage to tissues and the immune system that occurred during the infection.

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Latest Activity

tj1 replied to Lymelady's discussion Tachy heartb tachycardia
"POTS and resting tachycardia are two VERY different things. If it is Lyme related and physiological the most likely cause is anemia.  There are also some autoimmune causes. In any event it is generally an easily treated condition once the…"
yesterday
Lymelady posted a discussion

Tachy heartb tachycardia

Does anyone else experience an abnormally high heart rate . My heart rate is usually 117-125 . Dr said I was tachy and after researching I noticed my resting heart rate is abnormally fast.... Is Found there's a connection with lyme, sjrogrens,…See More
yesterday
Oli replied to Oli's discussion Bartonella - worsening of symptoms after 2.5 months of treatment
"No, I haven't...no doctor has offered it as option. Do you consider it important that I have it done? I am seeing my immunologist in a couple of weeks (the one who prescribed the antibiotics), perhaps I could ask him for a referral."
Sunday
tj1 replied to Oli's discussion Bartonella - worsening of symptoms after 2.5 months of treatment
"Have you had a spinal tap and culture?"
Sunday
Oli replied to Oli's discussion Bartonella - worsening of symptoms after 2.5 months of treatment
"Many thanks for your reply, tj1. Over the couple of years I have been seeing my neurologist I received about 3 different diganoses (atypical trigeminal neuralgia, atypical odontalgia, atypical facial pain...). MRI and a cat-scan don't show any…"
Saturday
tj1 replied to Oli's discussion Bartonella - worsening of symptoms after 2.5 months of treatment
"I would tend to agree with your assesment. Here the thing Bartonella without borreliosos is an entirely different thing.  Until around 15 years ago, only three human diseases were recognized as clearly attributable…"
Saturday
Oli's discussion was featured

Bartonella - worsening of symptoms after 2.5 months of treatment

Dear all,I have a question with respect to bartonella, which was found in my blood sample (no borreliosos was found). I have now been treated for 2.5 months with a combination of antibiotics - clindamycin and rifampin taken twice a day. At the…See More
Saturday
Oli posted a discussion

Bartonella - worsening of symptoms after 2.5 months of treatment

Dear all,I have a question with respect to bartonella, which was found in my blood sample (no borreliosos was found). I have now been treated for 2.5 months with a combination of antibiotics - clindamycin and rifampin taken twice a day. At the…See More
Saturday
Lymelady left a comment for Kritzy
"Welcome Kritzy, that's cool that your a writer. I write too. Welcome to the group. My joints hurt a lot too. Ibrofen and heating pads help my knees."
Friday
Lymelady posted a status
"Good. Went to ER last week thought I was having heart attack but had allergic reaction to clam chowder. No more shellfish."
Friday
Lymelady liked Ali401's discussion Getting Things Done without Making It Worse
Friday
Lymelady liked Ali401's discussion Getting Things Done without Making It Worse
Friday

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Blog Posts

Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 10:36pm 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…

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