Welcome!!!

Welcome! You're not alone.

If your family has been affected by Lyme Disease, consider the Lyme Disease Support Network your second home.

NOW....GET STARTED:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Lyme Disease Support Network is a patient-to-patient support for people with Lyme Disease.

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Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Community Moderators

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean

1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter are not allowed in the Chat Room.
5. Specific doctor or hospital names mentioned in a negative context, for legal reasons
.
Specific doctor or hospital names in a positive context are welcome.
6. Please take all political opinions to the appropriate place on the internet.   
7. Specific doctor or hospital names in a positive context are welcome.
8. No sharing of members' posts to other sites without their express permission.
 
Thanks for your cooperation.
 

 

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About

 

Ben's Friends Member Survey

Thank you for taking time to participate in our survey.  We are so grateful that more than 1000 of you responded! We are now working on analyzing the data. We'll let you know of the survey results soon.

Ben's Friends Now a Non-Profit 501(c)(3) Organization

This enables all donations to be tax deductible (starting with any made from July 2013), makes us eligible for corporate donations and matching gifts, and gives us access to grants and foundations (dramatically widening our donor pool), and provides benefits reserved for nonprofits (such as Google Ads credits).
This status will help us realize our ultimate goal - to ensure everyone affected by a rare disease has a safe place to go (our communities!) to connect with someone like them.
Thank you, Members and Moderators, for hanging in there with us and never wavering as we went through this difficult process. Now the real work can begin!
If anyone has any ties to grants, foundations, or partners who can help 501(c)(3) organizations, or if you have any past experience writing grant applications, please email us at partners@bensfriends.org

Mobile App and E-Book Available for Download!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Learn how others cope and be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

What is a Lyme Disease?

Lyme disease, or Lyme borreliosis, is an emerging infectious disease caused by at least three species of bacteria belonging to the genus Borrelia. Borrelia burgdorferi sensu stricto is the main cause of Lyme disease in North America, whereas Borrelia afzelii and Borrelia garinii cause most European cases.

Lyme disease is the most common tick-borne disease in the Northern Hemisphere. Borrelia is transmitted to humans by the bite of infected ticks belonging to a few species of the genus Ixodes ("hard ticks"). 

Latest Activity


Moderator
SK replied to SK's discussion Is anyone familiar with the link of magnesium deficiency with Lyme disease?
"Even here in the US, if proper tests were available to General Practitoners, it would save years of…"
34 seconds ago

Moderator
SK replied to SK's discussion Is anyone familiar with the link of magnesium deficiency with Lyme disease?
"Great info, dkel, and it all happens in our (dancermom and I) home state (Maryland) in Bethesda,…"
2 minutes ago

Moderator
dkel9307 replied to SK's discussion How long did it take you to get a diagnosis, or are you still waiting?
"Thank you slmo - I wish you all the very best. You may want to ask your doctor re IV ceftriaxone -…"
13 minutes ago
Profile Icondancermom and lauraflora were featured
19 minutes ago

Moderator
dkel9307 replied to SK's discussion Is anyone familiar with the link of magnesium deficiency with Lyme disease?
"Hi SK In Australia, we are unprepared for Lym Disease and there are very few Lyme Literate Doctors,…"
22 minutes ago

Moderator
dancermom replied to dkel9307's discussion Managing Rashes and Yeast Overgrowth
"This page also discusses using warm salt water and oil pulling to remove…"
23 minutes ago

Moderator
dkel9307 liked SK's discussion Is anyone familiar with the link of magnesium deficiency with Lyme disease?
24 minutes ago

Moderator
dancermom replied to SK's discussion Would anyone like to become or remain a featured member of Living with Lyme Disease?
"Remember, it doesn't have to be you. It can be a kitten, or Spiderman, or a rainbow. Any image…"
25 minutes ago
'What lies behind us and what lies before us are tiny matters compared to what lies within us' - Ralph Waldo Emerson

Best of Ben's Friends

Launch of Nephrotic Syndrome Support on CNN.com

For millions of people suffering from kidney diseases, NephroticSyndromeSupport.org is invaluable, as patient-to-patient interaction allows for an exchange of support and information. Click on this link to see how we launched our Nephrotic Syndrome Support site on CNN.com. http://ireport.cnn.com/docs/DOC-937040

Bensfriends.org Posts Milestones on Rare Disease Day 2013

Bensfriends.org champions people who suffer from rare diseases by raising awareness, fostering connection and empowering them. In 2012, the global social enterprise surpassed performance milestones despite meager resources, making it a major online social media advocate for orphan diseases. Read more from CNN iReport as Ben’s Friends Resident Writer, Armando Abrero shares report!

Best Of Ben’s Friends – February 2013

8 Feb 2013 – AVM Survivors – It’s been a long time since I shared anything. My daughter has been so sick. 1 Feb 2013 – Living With CIDP – Attitude Adjustment

What is Best of Ben's Friends?

Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to info@bensfriends.org.

 

 
 
 

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

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" To Know the Joy of Giving "

Blog Posts

March 2014 Community Newsletter

Posted by Ben Munoz on March 27, 2014 at 11:50pm 0 Comments

Dear Lyme Disease Support Family and Friends,

March 2014 is an exciting month for Ben’s Friends, as everything seems to fall into place! But before we share the good news, we invite you to participate in a brief survey on the positive…

Continue

18 and Younger

Posted by Madelyn on March 11, 2014 at 9:54am 1 Comment

I get the whole adults can help you and everything but, it's scary. How kids will treat you. Not even just being a kid. I'm tired as being acknowledged as the friend with Lyme

Events

Partners

BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

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