Welcome! You're not alone.

If your family has been affected by Lyme Disease, or Post-treatment Lyme Disease Syndrome consider the Lyme Disease Support Network your second home.


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Lyme Disease Support Network is a patient-to-patient support for people with Lyme Disease.


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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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What is Lyme Disease and Post-treatment Lyme Disease Syndrome?

Lyme disease, or Lyme borreliosis, is an infectious disease caused by species of bacteria belonging to the genus Borrelia.

Approximately 10 to 20% of patients treated for Lyme disease with a recommended 2–4 week course of antibiotics will have lingering symptoms of fatigue, pain, or joint and muscle aches. In some cases, these can last for more than 6 months. Although often called "chronic Lyme disease," this condition is properly known as "Post-treatment Lyme Disease Syndrome" (PTLDS).

The exact cause of PTLDS is not yet known. Most medical experts believe that the lingering symptoms are the result of residual damage to tissues and the immune system that occurred during the infection.


Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases.  Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

Foggy left a comment for Kara
"Is this the only way to share.  I'm new at this but so happy I found it.  I'm retired and have a 23 yr old daughter who lives at home but isn't around much. (and 2 doggies) She is not really wanting to know about lyme. Mind…"
3 hours ago
Foggy left a comment for Kara
"they thought I had ms also.  I had the tingling the facial palsy, severe headaches.  I went to er and they did 2 ct's and then I had an mri.  no ms.  I tested negative twice with serology.  One doctor didn't listen…"
3 hours ago
Foggy and Kara are now friends
3 hours ago
Kara left a comment for Foggy
"Hello ! Yes I am from Alberta , I have support from family however medical support is little however happening , I'm open to share stories treatment plan etc"
4 hours ago

dancermom joined Jen's group

Financial Assistance for Lyme Patients

A place to post links and information on providing financial support to Lyme patients during times of need.
4 hours ago

dancermom and Foggy are now friends
4 hours ago
Foggy left a comment for Kara
"Hi Kara I see you too are from Canada. I'm from quebec. I wanted to know what resources you have and where you are at with all of this"
4 hours ago
Foggy's discussion was featured

New member who is suffering physically and thus emotionally

Hi I joined only last nite. I have no support at home as it "seems"that we don't have lyme where I live in Quebec. When they say listen to your body as you know it best, it's so true, I did but I trusted the ID who saw me 3 times and lost my window…See More
5 hours ago
Foggy posted a discussion

New member who is suffering physically and thus emotionally

Hi I joined only last nite. I have no support at home as it "seems"that we don't have lyme where I live in Quebec. When they say listen to your body as you know it best, it's so true, I did but I trusted the ID who saw me 3 times and lost my window…See More
5 hours ago
Foggy left a comment for dancermom
"Thank you. I'm happy to finally have people to talk to. I'm tired of crying to my daughter who won't even read about lyme."
6 hours ago

dancermom left a comment for Foggy
"Welcome, Foggy, to this supportive community. Feel free to open a discussion to introduce yourself or ask questions. Best wishes!"
10 hours ago
Foggy is now a member of Lyme Disease Support Network - Online Support Group
18 hours ago



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Blog Posts

New Member

Posted by Supermom8284 on December 13, 2014 at 10:24pm 1 Comment

Thank You Dancemom!

I'm happy to have found a support group as well as sad to find so many who are living the life of Lyme. I look forward to getting to know those who are members of this group. I pray each and everyone of us will find… Continue



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