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Welcome! You're not alone.

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1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group

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Check our FAQ PAGE and First-Time-User Guide.

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To change your username, click here. 

Lyme Disease Support Network is a patient-to-patient support for people with Lyme Disease.

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Disclaimer

All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment

Always seek the advice of your physician or other qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Community Moderators

Have a question, concern, or suggestion? Or would you like to volunteer?

Please send a private message to a moderator.

Tj1
GrumpyCat
Dancermom
Purplebutterfly

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
  2. No spam.
  3. No personal attacks or defamatory posts.
  4. No offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. No solicitations or promotions of goods or services. No fundraising without the permission of the moderators.
  8. No email addresses or phone numbers on the forum, for your security.
  9. Religious content must be restricted to the Prayer Group.
  10. No politics, please.

Thanks for your cooperation.

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What is Lyme Disease and PTLDS?

Lyme disease, or Lyme borreliosis, is an infectious disease caused by species of bacteria belonging to the genus Borrelia. Approximately 10 to 20% of patients treated for Lyme disease with a recommended 2–4 week course of antibiotics will have lingering symptoms of fatigue, pain, or joint and muscle aches. In some cases, these can last for more than 6 months and can be quite debilitating. Although often called "chronic Lyme disease," this condition is more accurately known as "Post-treatment Lyme Disease Syndrome" (PTLDS).

The exact cause of PTLDS is not yet known. Most medical experts believe that the lingering symptoms are the result of residual damage to tissues and the immune system that occurred during the infection.

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Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases.  Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity


Moderator
Madere (dancermom) left a comment for AJ
"Welcome, AJ, to this supportive community. Feel free to open a discussion to introduce yourself or ask questions. Best wishes!"
12 hours ago
AJ is now a member of Lyme Disease Support Network - Online Support Group
12 hours ago
Kristina replied to Peachtree's discussion New member...possible Lyme?
"I also got diagnosed with Raynauds this past month, also has to do with circulation."
yesterday
Kristina replied to Peachtree's discussion New member...possible Lyme?
"Forgot to mention...get Western blot checked, that's one of the definitive tests for Lyme."
yesterday
Kristina replied to Peachtree's discussion New member...possible Lyme?
"Hi, so sorry you're going through all of this. I have had similar things happening. Well, I've been "sick" for years, fatigue, brain fog, rectal bleeding, joint pan , abdominal pain, spider veins, very bad circulation…"
yesterday

Moderator
Madere (dancermom) left a comment for Sabrina
"Welcome, Sabrina, to this supportive community. Feel free to open a discussion to introduce yourself or ask questions. Best wishes!"
Friday
Sabrina is now a member of Lyme Disease Support Network - Online Support Group
Friday

Moderator
GrumpyCat left a comment for Kristina
"Welcome to the community, Kristina! We are so glad you joined us. :-) It sounds like you've been through a lot lately. You'll definitely get the support you're looking for in our community. If you have any questions, or would like to…"
Thursday

Moderator
Madere (dancermom) left a comment for Kristina
"Welcome, Kristina, to this supportive community. Feel free to open a discussion to introduce yourseld or ask questions. Best wishes!"
Thursday
Profile IconKristina and vickitz joined Lyme Disease Support Network - Online Support Group
Thursday

Moderator
Madere (dancermom) left a comment for vickitz
"Welcome, vickitz, to this supportive community. Feel free to open a discussion to introduce yourself or ask questions. Best wishes!"
Wednesday

Moderator
tj1 replied to Krissy's discussion Coping
"Generally speaking, the less information you give out the more understanding people have. Details give rise to suspicion and/or doubts as well as second guessing. NEVER medicalize anything, you sound immediately like a hypochondriac when you do.…"
May 19
 
 
 

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for the right phone numbers in your region.

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BFApp2“We’re In This Together: Stories & Tips from Patients with Rare Diseases” can be found HERE.

Please forward to patients/family/friends affected by rare diseases.

Blog Posts

Local Fundraiser for Ben's Friends

Posted by Scott Orn on March 22, 2015 at 11:29pm 0 Comments

I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends."

It was a big success as we…

Continue

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