Welcome! You're not alone.

If your family has been affected by Lyme Disease, or Post-treatment Lyme Disease Syndrome consider the Lyme Disease Support Network your second home.


1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

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Since content and usernames are searchable on this site, you may protect your anonymity by creating a unique username.

To change username, click here. 

Lyme Disease Support Network is a patient-to-patient support for people with Lyme Disease.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean

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5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. 
Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.
Thanks for your cooperation.


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Ben's Friends Fundraiser

Hi Past & Present Ben's Friends Supporters! 
We really need your help. Our annual Ben's Friends fundraiser is way below goal. So far we are at $14k with many generous donations. But at the very least we need to be at $25k, and ideally at $35k or above. 
We're probably the most efficient non profit in the world, helping 125,000 patients per month with a budget of $3k per month. But even we can't survive on $14k. 

Please donate at our super easy Donation Page at Ben's Friends . A $5 donation will make a big donation. Everything is tax deductible!

We realize most members aren't in a position to donate. Those members can help by spreading the word about the fundraiser on the communities and on Facebook. 

We need your help to keep Ben's Friends alive and going strong!
We really need your help! Please donate, even if it's $5, that will really help.

(Co-Founder of Ben's Friend)

What is Lyme Disease and Post-treatment Lyme Disease Syndrome?

Lyme disease, or Lyme borreliosis, is an infectious disease caused by species of bacteria belonging to the genus Borrelia.

Approximately 10 to 20% of patients treated for Lyme disease with a recommended 2–4 week course of antibiotics will have lingering symptoms of fatigue, pain, or joint and muscle aches. In some cases, these can last for more than 6 months. Although often called "chronic Lyme disease," this condition is properly known as "Post-treatment Lyme Disease Syndrome" (PTLDS).

The exact cause of PTLDS is not yet known. Most medical experts believe that the lingering symptoms are the result of residual damage to tissues and the immune system that occurred during the infection.


Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases.  Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

dancermom updated their profile
1 hour ago
Foggy replied to Foggy's discussion Lyme and neurology
"I am doing my best. Doxy done tomorrow but I have already begun treatment with a naturopath. I the all these meds take such a toll on our body "
8 hours ago
Moo replied to Foggy's discussion Lyme and neurology
"Hello Foggy,    I know how this is. Good name choice. lol I was on doxy for over a year. It knocked out my Rocky Mountain Spotted Fever. I had many of the same symptoms you have mentioned in your discussion. A lot of them had subsided…"
10 hours ago

dancermom left a comment for Orlia
"Welcome, Orlia, to this supportive community. Feel free to open a discussion to introduce yourself or ask questions. Best wishes!"
10 hours ago
Orlia is now a member of Lyme Disease Support Network - Online Support Group
10 hours ago

dancermom left a comment for racing lymie
"Welcome, racing lymie, to this supportive community. Feel free to open a discussion to introduce yourself or ask questions. Best wishes!"
racing lymie is now a member of Lyme Disease Support Network - Online Support Group
Foggy posted a discussion

Lyme and neurology

I have now been on doxy for almost 6 weeks. At 6 weeks, I'm done. I'm also scared. Although my inflamation is so much better, my rashes too, I have developed major numbness and tingling in my hands, feet and sometimes face along with burning across…See More
Zephyr was featured
Jan 22
Zephyr liked tj1's discussion IgeneX Testing
Jan 22
Zephyr replied to tj1's discussion IgeneX Testing
"Wow, this is an extremely helpful info. which makes me want to dig out my old Igenex test and start to understand it. Thank you! Just curious...approx. how much does a Lyme and co infection Igenex test run? Thanks."
Jan 22
Zephyr posted a photo
Jan 22



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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.


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BFApp2“We’re In This Together: Stories & Tips from Patients with Rare Diseases” can be found HERE.

Please forward to patients/family/friends affected by rare diseases.

Blog Posts

New Member

Posted by Supermom8284 on December 13, 2014 at 10:24pm 1 Comment

Thank You Dancemom!

I'm happy to have found a support group as well as sad to find so many who are living the life of Lyme. I look forward to getting to know those who are members of this group. I pray each and everyone of us will find… Continue



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