My name is Allie and I am a sophomore in college. I am studying Mining Engineering. My lyme story is about the same, I was misdiagnosed for a long time (chronic hives, chronic fatigue, depression, etc.) The funny thing is is I had the bullseye rash all over my arm and no one noticed. I was actually treated for ringworm twice. Once I finally got diagnosed with Lyme I thought “thank god I have an answer and can move forward.” But I was so wrong.
I ended up getting something called an alpha-gal allergy from the tick. I cannot eat read meat at all and I get delayed reactions but they are extremely severe. I get hives on every inch of my body and my eyes, lips, and tongue swell up about 3-8 hours after I have eaten something. I have been in the ER (had to use my epi pen) about 4 times, and then I am put on a heart monitor and IV of steroids. I am a huge outdoors person, so my allergist thinks I was likely bitten by two ticks- which apparently makes the alpha-gal allergy worse. So now I have reactions to nearly everything created or having to do with other mammals (i.e. milk, eggs, gelatin etc.) I know this sounds extremely crazy- when I was told this I laughed, but it is something pretty interesting to learn about. Vanderbilt is doing a lot of research on it and has many articles if you are interested!
Anyways; This has been going on for quite some time. I feel that my friends and family are burnt out. Its hard to be positive and pick myself up at times because I keep having these crazy allergic reactions and I fear that I will die from them. When i express these things to my friends, boyfriend, and family, I just sometimes feel like a miserable down in the dumps person. I used to be so incredibly happy, and I was positive all the time, but this disease and this bug has absolutely ruined me. Today- I found out my childhood best friend took his own life, I did not even have time to react or feel to this because I accidentally ate something that caused me to swell up all over again. My life has become being drugged on benedryl for 70 percent of the time. I feel lost, and like I cant keep leaning on my friends and family for support. I need to be stronger emotionally in order to get through this, I was hoping coming here would help get some tips. Not only that but it would be wonderful to talk to people going through the same issues who understand how hard this is.
I am not suicidal or looking to harm myself, I am just hoping to find some support and hope on here, or maybe some friends.
Thank you all