Hi, my name’s Katie and I’m actually posting on behalf of my friend Josh, because he’s too sick with Lyme to go on the computer and write. Josh is in a bad way. I believe he was diagnosed about a year and a half ago, and his life has become a living hell, although it wanes and waxes to a degree. We’re hoping to get some answers or at least hear some similar stories to what he’s experiencing, as no doctor has recognized some of his symptoms.
On top of the usual brain fog and I believe actual pain in his head, and raw nerve endings, Josh experiences something that he describes as the “gravity effect,” where he feels strongly that gravity or a heavy weight pulls on his body. Sadly, it’s at his worst when he either sits, lays down, or stands still, so he spends most of his time walking around his neighborhood and has to constantly move his feet. Standing still, sitting, or laying down is just too excruciating and overwhelming.
He’s started Oxygen treatments (is that what it’s called? Forgive me), but so far out of his four treatments, he only gets kind of a floaty feeling afterwards that lasts, but it doesn’t help with the gravity effect. This pulling-down is so strong that he wears a neck brace to keep his head up, and it hurts him a lot.
He’s been on intravenous antibiotics for a while with no effect, and keeps a religiously healthy diet. I’ve never seen him look more horrible. He is stick-thin and haggard and looks as ill as he seems to feel.
Josh is at his wit’s end, and if he wasn’t morally and for all other reasons opposed to it, he told me would think about ending his life. He also can’t sleep because of the gravity feeling, it’s so terribly uncomfortable to lie down, and is losing his mind over getting almost no rest.
Have any of you experienced anything even remotely resembling this gravity effect? The Lyme doctor and neurologist have never heard of such a thing. And if you or someone you know hasn’t experienced it but you know of an expert, can you please refer/recommend?
It is extremely difficult to see my friend suffering so badly, and I can’t even imagine what it’s like for him. Any help is deeply appreciated.