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Lyme Disease Support Network

May 2014 Community Newsletter


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Rejoice and celebrate the season of Spring. Enjoy the colors and the beauty of nature. Reach out to your friends and loved ones and share the warmth, the colors and happiness of Spring. Greetings from Ben’s Friends!

Welcome New Members!

Thanks for signing! This site is built for the patient, spouses, parents, siblings and friends. Our goal is to connect you with others so you don't feel alone or don't want to overwhelm your family.

Help yourself. Explore our community, write about your experience, ask the community. Reach out to the community anytime you need support. Have fun! Again, our warmest welcome to you.

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IN THIS ISSUE

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Lyme Disease Support COMMUNITY HIGHLIGHTS

Featured Content

Featured Member

Picture of the Month

Community Stat

BEN'S FRIENDS HIGHLIGHTS OF THE MONTH

Kudos to Our Ben's Friends Facebook Team

Life With Crohn's is Coming Soon

Ben's Friends Joins the AVM TAAF Walk 2014

Lyme Disease Support COMMUNITY HIGHLIGHTS

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Featured Content: 5 Stages of Lyme Loss/Grief - by Mashy

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Through the help of some references, Michelle describes the stages of Lyme and how they all work and feel. From denial to acceptance, see how the condition affect life itself. Ever experienced the same? Share your comments and perhaps story to a fellow Lyme warrior on her discussion post!

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Featured Member: isaccsmom

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After being misdiagnosed in many times, isaccsmom has now confirmed on what she really has. She also describes how it affects her quality of life on her profile page. But, despite all of that, she is managing to reach out to fellow members of the community and sharing her story for the knowledge of others. Isaccsmom is also in need of information, according to her newly posted discussion entitled, "Finally Diagnosed, now what?". Perhaps leave out an informative comment that can contribute for added knowledge. You can also leave a message for her on her profile page on how she is courageously battling the condition and how she has a family right behind her to help her out.

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Picture of the Month

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Need some inspiration in your journey? Check out this photo mary shared for something to ponder on while your moving forwards in life.

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Community Stat:

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Number of Members as of May 1, 2014 : 163

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BEN'S FRIENDS HIGHLIGHTS OF THE MONTH

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Kudos to Our Ben's Friends Facebook Team

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Have you seen our Facebook pages lately? Thanks to the FB team who have given our Facebook pages a new and improved look: Dancermom and Debra (AVM), Amanda (Addison's), Jane (PsA), Mandy (Chiari), Mads, Nel, and David (Erythromelalgia), and above all, our talented and dedicated Facebook Manager, Stephen Cox (PSC and Crohn's).

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Life With Crohn's is Coming Soon

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We are pleased to announce the launch of our Life With Crohn's community - a community dedicated to patients affected by Crohn's- a chronic condition that causes inflammation of the gastrointestinal tract. If you know someone who has Crohn’s Disease, please invite them to join our community and spread the word about Crohn’s.

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Ben's Friends Joins the AVM TAAF Walk 2014

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Ben's Friends Partners (Eric, Scott and Haley) along with several AVM Survivors members joined the 9th AVM-TAAF Walk2014 on May 4, 2014 in San Francisco. Over 500 participants gathered to raise awareness and funds to support TAAF's research, educational outreach, and programs. The Aneurysm and AVM Foundation (TAAF) is a 501c3 nonprofit dedicated to bettering the lives, support networks, and medical care of those affected by aneurysm and other vascular malformations of the brain.

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