Hi everyone! I am so glad to be a part of this network!
My story is long, but crazy. When I was about 5 years old I fell very ill and was hospitalized for Rocky Mountain Spotted Fever. By age 10, I was starting to have problems with extreme fatigue and swelling in my knees. By age 15, I had developed a heart condition that was diagnosed as PSVT (I think this diagnosis will change or we will add Lyme Carditis). By 18, I was suffering with severe joint pain, muscle pain, fatigue, carpal tunnel and bipolar disorder. At 25, I was diagnosed with fibromyalgia. It made some sense, but it still didn’t explain everything for me. So, I started researching and the answer was always Lyme Disease. Last week, at 33 years of age, I finally found a doctor willing to test me. They found I was positive and it was very active.
I just started my first antibiotic treatment. 28 days of amoxicillin. I am already feeling worse. It seems my chest pains and palpitations are much more frequent and I hurt so deeply. I have no insurance and no clue how we will pay for treatment. I know I am looking at a course of IV antibiotics and a whole lot more that I don’t even know about yet. I look forward to learning from all of you and thanks for listening!