So I get a call from my primary care physician who admitted to me on Friday that she didn't know anything about Lyme Disease except that once you test positive you always test positive. She also told me Friday that she didn't know anyone who specialized in the field. Today she informs me that the tests for RA came back negative this time which is great. Then she proceeds to tell me that she consulted with an infectious disease doctor at a nearby university hospital who is familiar with Lyme. (wait...didn't she say she didn't know anyone???) She sent him a copy of my lap results and he said that it was technically negative based on CDC standards even though I did have all the necessary bands for a positive reading. (insert very confused look here) I asked how this could be especially when I was responding to the doxycycline? She goes on to say that 3 of the band were in the correct positioning but 2 of the bands were not. There for my lab result was partially positive. To me that is like telling a woman "you're partially pregnant". So I was given 2 choices. Accept this NEW diagnosis which in CDC's eyes means I'm negative for Lyme Disease and go back to square 1 of "we don't know what's wrong with you" or repeat the blood test in 2 weeks which would be 8 weeks from my original blood test. I chose repeat the blood test.
I then asked her what about my swollen lymph node behind my ear and the ear pain I'm having. Again she said she didn't know what was causing that as my white blood cell count was back into the normal range. (insert aggravated look here)
I'm thinking it's time to look for an immunologist. Someone that can look at my immune system and maybe get to the bottom of things.
Thoughts anyone? I'm really frustrated here. All of my symptoms point to Lyme Disease and the doxycycline was working. I was starting to feel human again. Now I'm back to joint pain, increased fatigue, decreased stamina, ear pain, and daily headaches.